Life is Limited but Families are Forever

Life is Limited but Families are Forever
We are the SUPER STOKES

Apr 27, 2017

Saving the horses

Dear Y'all,

Today I don't want to forget this... 

One of Amy's favorite TV shows is Little Eisensteins.  She loves singing, patting, and listening to identify their music. One episode is them trying to save a monkey from an erupting volcano. Ever since then she is obsessed with hills being volcano's.

Today we went on an adventure (a walk) that sparked some fun. She continually amazes me with her level of 'smarts.' If I wasn't there I don't know if I would believe just how much she created this but she did. She created a trip all by herself, of course I encouraged it all the way, helping her fill in the spots and playing along with her. Her imagination created the small hump of a hill by the school building where we live became a volcano. The horses 'down the way' suddenly needed to be saved (petted) and off we went recreating the episode with her own twists.  We went to save the horses first by  blasting off (running), we sang, did silly body movements (in the show they call it dancing), and watched out for trouble (passing cars). Then on the way back we climbed the volcano and 'stopped' it from erupting just in the nick of time.  I can only imagine what the little old lady we passed was thinking of our crazy behavior but none the less I really didn't care. I love my daughter and encouraging her is more important then someone elses thoughts. 

We even sported our sunglasses. She found an old pair that I had as a photography prop and claimed it as hers. She wore them the entire time,  which is a first. She is so fun to be with! I love having her and she definitely completes our family. I couldn't imagine life without her. I'm so grateful God sent her to us, and the nap she is now taking because of all this...
Love Ya,
S
Starting the adventure. (blasting off!)
Saving the horses
Amy on top of the volcano (after I 'climbed' it)


Apr 26, 2017

Get the facts

Dear Y'all,

As the month of April comes to a close I want to spread some facts about Autism. A lot of wrong information is out there. I recommend searching out real websites that hold facts. This doesn't include someones blog with their opinion. Opinions or experiences no matter if their child or children have autism doesn't make it real or factual. Its just that, an opinion or an experience. www.austismspeaks.org and www.autism-society.org  are some good website for facts on autism.

Austism rarely comes as a single diagnosis. This is where a lot of the confusion lies. The definition I like of Autism is on the Autism Society website under the heading "What is Autism?" it states: "Autism spectrum disorder (ASD) is a complex developmental disability; signs typically appear during early childhood and affect a person’s ability to communicate, and interact with others. ASD is defined by a certain set of behaviors and is a “spectrum condition” that affects individuals differently and to varying degrees. There is no known single cause of autism, but increased awareness and early diagnosis/intervention and access to appropriate services/supports lead to significantly improved outcomes."

Some facts I would like to put out there are this:

1. You cannot "see" Autism in someones physical appearance.

2. Not all Autism cases will have sensory issues (i.e.excessive clapping hands, sudden loud outbursts, etc) but most  do have sensory issues. This is something commonly found in lower functioning Autism cases. Luke is high functioning and does not have any visual sensory issues.

3. Autism children are 'retarded' and uneducated or stupid is a huge misconception. Calling someone with Autism retarded is not only uneducated and stupid sounding this is also like calling someone (excuse the swearing but its true) an ass-hole or such derogatory name. High function autism cases actually shows most of them are extremely intelligent or on the genius side of I.Q.

4. Not all Autism cases have children who are violent, but some do. This is due to a sensory overload and the output is violent behavior. View it as them having their nervous system on the outside of their skin and not the inside. They are more sensitive then most. Luke is naturally non-violent but if pushed he will act out as a sensory overload because he is overwhelmed and been pushed to his limit. To be fair this has happened only maybe twice that I know of for sure and that was due to a bully in school. His most common sensory overload output is crying and shaking. Most people view it as a tantrum, but let me be very clear. It is a melt down. I have had people say just spank him or put him in a time out it will stop. No, this is very untrue. Experts have shown that is not helpful and actually damaging to child with autism. This area I could go into a lengthy explanation onto how we discipline Luke but I'm going to end it here because thats individual to each family.

Luke case is HF ASD, the long version of that is High Functioning Autism Spectrum Disorder (in olden days people called this Asperger Syndrome but that classification no longer accurate) he also has Attention Deficit Hyperactivity Disorder. He also has a mathematics learning disorder and reading/comprehension learning disorder. In his school he is in a regular classroom but he is taken out regularly for addition helps in these areas as stated in his I.E.P. If you don't know what an I.E.P its basically an outline stating that various medical personal saying he requires certain classroom accommodations to be able to learn. This is basically by law, the school has to accommodate Luke in these areas, or risk serious penalties. They're more to his I.E.P but its all technicalities for testing, breaks, etc.

According to a recent study done by the Center of Disease Control and Prevention stated out of 68 births in the United States 1 will have Autism. To make it more complicated boys are 1 in 54 births... The Autism Society website continues its explanation, "Some of the behaviors associated with autism include delayed learning of language; difficulty making eye contact or holding a conversation; difficulty with executive functioning, which relates to reasoning and planning; narrow, intense interests; poor motor skills’ and sensory sensitivities. Again, a person on the spectrum might follow many of these behaviors or just a few, or many others besides. The diagnosis of autism spectrum disorder is applied based on analysis of all behaviors and their severity." 


This is about all that I want to say. I have two pictures I am adding that can help you understand Luke better and better communicate with him. These images are ones I found on Pinterest that I like and are not originally made by me. I love the Autism Awareness puzzle because Luke actually really likes puzzles and putting them together. 


Autism Awareness 
*Accept, Understand, Love* 
*Different, not less*



Love Y'all,
S

Apr 24, 2017

She's the mom of my best friend

Dear Y'all,

I formally met the mother of a kid in Luke's class for the first time. We were at the therapy office and I said "Hi" to the boy and he responded "hi" and when the mom inquires who I was the boy said, "oh she's the mom of my best friend!"  😍 😍 😍  That is music to my ears. I love that Luke is making friends at school! It helps that they have similar "extraordinary abilities." I love that my volunteering at his school hasn't gone unnoticed.

Last week he was invited to another kids birthday party, I asked him if he wanted to go and he responded, "I guess I do because I don't want her to feel no one wanted to come." We ended up not being able to go but he did inform her so "she wont feel bad." He is so incredible, he is so thoughtful of others. We are so blessed to have him!

Love y'all
Shannon

Apr 2, 2017

Autism Awareness Day/Month

Dear y'all,

I love my kids. Its hard to parent but especially so when kids are sick. It stinks because you want to take away the sickness but can't.


We are having our "turn" with the Flu right now. Oh how it stinks. Luke also had dental work done. This was traumatizing in itself but he handled it like the champ he is.  He is on a soft food only diet for awhile because of the work done. Dennis took him back to the doctor for another check. When they finished he was given the traditional sucker. He took it but saved it for Amy because he knew he couldnt eat it. I love that in the midst of a very hard week for him he thought of Amy. He is sweet like that. I can't ask for a more thoughtful kid.


On National Autism Awareness Day  I want to say that there is more to autism and the autism kids than meets the eye. Its time to educate the world and stop judging. Many times people have said some form of "just spank the kid." My reply is "I can't 'spank' the Autism out of my kid any more than I can 'slap' the ignorance out of you." So next time you think a parent should just "spank" a child, you need to get informed. Its about acceptance, love, and understanding. Them being different, not less. Most of what you see in public is an autism melt down, not a tantrum. Understand the difference.  If you want to learn more just google Autism Awareness Month (April)  and you will find plenty of sources of information.


My house is lit-up blue! You should go blue too! For Autism awareness and for Luke.

Love,
S